New H-CARDD ICES Report on Health Care Outcomes and Developmental Disabilities Now Available

The Health Care Access Research and Developmental Disabilities (H-CARDD) Program is pleased to share its latest report, Addressing Gaps in the Health Care Services Used by Adults with Developmental Disabilities in Ontario. This study builds on the landmark study, Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario.

This report describes how adults with developmental disabilities differ from adults without developmental disabilities with regard to five important health and health care outcomes: 30-day repeat emergency department visits, 30-day repeat hospitalizations, alternate level of care, long-term care use, and premature mortality. Results show that adults with developmental disabilities were disadvantaged for every outcome examined in this report. This was true regardless of age, sex, the wealth or poverty of the neighbourhood where they lived, or the kind of developmental disability they had.

We propose a number of solutions to address the gaps in health care services used by adults with developmental disabilities in Ontario.
Our results reinforce research from other countries showing that adults with developmental disabilities are a highly vulnerable population that needs multifaceted solutions addressing a range of health care outcomes. Many of the recommendations that we and others have made for the five outcomes overlap, pointing to the need to take a broader system perspective.

H-CARDD shall continue its research, and work with health care providers, patients, family members, policy makers and other stakeholders to address these issues. We would like to thank our funding partners, including CIHR’s Partnerships for Health System Improvement Program, the Ontario government and community partners.
Members of the H-CARDD Program welcome any questions, stories or suggestions that you may have about the health and health care of adults with developmental disabilities in Ontario. You can email us at More information about the H-CARDD Program can be found at

We invite you to read the full report and summary / sommaire