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I recently spoke with the Mother of a person with an intellectual disability regarding available services. She was put on a waitlist prior to the formation of Developmental Services Ontario (DSO) by another organization that I can’t recall at the moment. Even though the file should have been transferred to DSO when it took over the intake role for all government funded Developmental Services organizations in Toronto, I recommended that she call them to update the info on that file as it may not be current. She told me that a Toronto based Family support organization- which I don’t want to name- recommended to her that she not contact DSO in order to avoid doing the Support Intensities Scale (SIS) assessment. I told her that everyone would eventually be getting a SIS assessment and that she could potentially be missing out on a vacancy right now for her son because the info on file could be terribly out of date. I hope no one else has been given this advice not to contact DSO because this is the only way to receive government funded services!
Although it is certainly true that you need to go through the DSO process to have any hope of getting funded services, so this was bad advice indeed, the service provider might have been considering the possibility that people who qualified for services under the “old” system would not qualify for them under the new standardized criteria and so would lost their slot. I believe there is some uncertainty in this area. That said, even once you’re through the DSO process, it is strongly advisable to get a copy of your adult child’s record regularly so it is as current as possible – maybe make it part of birthday activities so you don’t forget. I also suggest that you get a copy immediately following the whole DSO assessment process: this should be give to you as a matter of course, but when I went through the process some years ago this was not the practice, and my son’s record was profoundly inaccurate.
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