Hi All.
For those of us who have adult children and are looking for more practical, day to day support, rather than emotional support.
Once your children have reached adulthood, you have come to grips with the disability portion, and tend to be looking at ways to support the individual to have a great life. This support, which has been provided by parents for the most part, needs to move to younger support options. A 20 to 30 something individual should not be living a 50 to 60 year old life. The 20 to 30 year old years are more risk taking, social investigating and learning the ups and downs of being independent and making decisions about your life.
Along with parents being less and less important to an adult life, someone has to learn to take over the financial support items that enable our special needs children to live the life they want. This will probably fall to adult siblings. Some kind of training and understanding is needed that is up to date, factual, and gives siblings the tools to carry on what parents have established and perhaps improve upon how things are done as a new perseptive with young fresh eyes takes over.
Does anyone know of such groups and is anyone interested?