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Early Identification and intervention

 

Including Children with Special Needs: A Guide for Child and Family Programs

This workshop offers tips and strategies for talking with parents about their child’s development, and highlights this information in the manual. The workshop also explores the use of screening tools, such as the Nipissing and ASQ, to support these conversations with parents. Macaulay staff Maria Velasquez , Early Literacy Specialist, and Sofia Iglesias, Special Needs Resource Consultant, are the facilitators.

Associated links

Financial and Legal Resources

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The Transition to Adulthood: A parents story

Matt, a father, shares his experiences of being a primary caregiver for his daughter Leah, who has a developmental disability as well as complex care needs. Matt speaks about resources that he has used with some success, and the transition into adulthood for Leah and what it means for both father and daughter. This presentation was done for a LIGHTS event in partnership with Community Living Toronto on April 12th, 2017.

5 things You Should do if you are Supporting a Child with a Disability

A discussion of five important financial related actions you should take to maintain your child’s and your own financial well-being. Read more

Inspiring Possibilities Estate Planning Guide: A Tax, Benefits, Trusts, and Wills Toolkit for Ontarians with Disabilities

Developed by PooranLaw Professional Corporation, this comprehensive guide provides up-to-date information pertaining to wills, trusts, benefits and personal rights most frequently asked by people who have a disability, their relatives, caregivers, and professional advisors. (French and English versions available)
Download your copy: https://communitylivingontario.ca/resources/wills-estate-guide/

Partners For Planning (P4P)

P4P empowers people with disabilities and their families with FREE resources to create meaningful lives and secure futures, firmly rooted in the community. We help families envision, plan and implement strategies to ensure that your loved one is safe, fulfilled, respected and financially secure—from childhood into adulthood and for the rest of his or her life.http://www.partnersforplanning.ca

Special Needs Planning Group

Special Needs Planning Group assists families in establishing plans which will provide their family members with a disability with a decent quality of life for their entire lifetime while at the same time, preserving their entitlement to government support programs. http://www.specialneedsplanning.ca/

Resources to help with legal and financial issues

From time to time, self-advocates and family supports run into obstacles, gray areas, and bigger problems in the course of navigating the world. Families report struggling with issues such as filing taxes; setting up bank accounts; obtaining insurance; struggling to keep employment; or estate planning. Read more


Registered Disability Savings Plan (RDSP)

Registered Disability Savings Plan

A registered disability savings plan (RDSP) is a savings plan that is intended to help parents and others save for the long term financial security of a person who is eligible for the disability tax credit. https://www.canada.ca/en/revenue-agency/services/tax/individuals/topics/registered-disability-savings-plan-rdsp.html


Henson Trust

Henson Trusts: Preparing for the Future

When planning for the well-being of our sons and daughters with disabilities, we are usually attempting to protect their entitlement to government support programs. The Henson Trust (also referred to as the Absolute Discretionary Trust) is used for that purpose. Read more

Consider a Henson Trust

Henson Trusts have been allowed ever since the mid-1980s, when Ontario’s Court of Appeal decided that a person with a disability receiving Family Benefits should not be cut off from benefits if they were getting money from a trust set up to help them, so long as the trust gave a complete control (or ‘absolute discretion’) to the trustees about when to make payments from the trust. https://pooranlaw.com/wholelifeplanning/questions/wills-trusts-estates/hensontrusts/


Property

Power of Attorney for Property

An individual may become unable to make decisions about his/her property and finances either through a serious illness or accident. All adults in Ontario are encouraged to make a continuing Power of Attorney for Property, appointing someone who can make certain financial decisions if required. Read more

Continuing Power of Attorney for Property

This resource explains what a Continuing Power of Attorney for Property is, reasons to make one, and what can happen if you do not. Topics include how to make a Continuing Power of Attorney for Property, when an attorney can make decisions, the type of decisions they can make, and where to get forms, legal information, and help.
http://www.cleo.on.ca/en/publications/continuing
Sourced from Community Legal Education Ontario (CLEO) http://www.cleo.on.ca/en

Understanding Capacity, Competency & Consent 1: Introduction (Podcast)

A Shared Learning Forum Series Workshop with Elaine Atchison, Ministry of the Attorney General, Ontario (Recorded October 26, 2007)

Audio MP3

Understanding Capacity, Competency & Consent: Property (Podcast)

A Shared Learning Forum Series Workshop with Elaine Atchison, Ministry of the Attorney General, Ontario (Recorded October 26, 2007)

Audio MP3

Personal Care

Understanding Capacity, Competency & Consent 2: Personal Care (podcast)

Shared Learning Forum Series Workshop with Elaine Atchison, Ministry of the Attorney General, Ontario (Recorded October 26, 2007)

Audio MP3

Power of Attorney for Personal Care

This resource explains what a Power of Attorney for Personal Care is, reasons to make one, and what can happen if you do not. Topics include how to make a Power of Attorney for Personal Care, when an attorney can make decisions, the types of decisions they can make, and where to get forms, legal information, and help. http://www.cleo.on.ca/en/publications/power
Sourced from Community Legal Education Ontario (CLEO) http://www.cleo.on.ca/en

Manual for Helping People with Intellectual Disabilities Choose an Attorney for Personal Care

This manual is useful in helping to understand the role of attorney for personal care and provides tips on choosing the best person available to take on this role.
Manual for Helping People with Intellectual Disabilities Choose an Attorney for Personal Care
Sourced with permission from www.aging-and-disability.org

Pictorial Power of Attorney Concerning Personal Care Booklet

A pictorial tool to help explain “Attorney for Personal Care” to individuals with intellectual disabilities so that they can make an informed decision. Adapted from “Manual for Helping People with Intellectual Disabilities Choose an Attorney for Personal Care”. Pictorial Power of Attorney Concerning Personal Care Booklet
Sourced with permission from www.aging-and-disability.org

The Public Guardian and Trustee: Investigations

Presenter: Denise Hannivan, Investigator OPGT

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The Office of the Public Guardian and Trustee (“OPGT”) delivers a unique and diverse range of services that safeguard the legal, personal and financial interests of certain private individuals and estates.

Recorded at the Shared Learning Forum April 26, 2019

An online tool designed to help you manage your Special Services at Home (SSAH), Passport, and Residential funding. MyDirectPlan.com


ODSP (Ontario Disability Support Program)

Ontario Disability Support Program (Ontario Ministry of Children, Community and Social Services)

The Ontario Disability Support Program helps people with disabilities who are in financial need pay for living expenses, like food and housing.

The program provides eligible people with disabilities with:

  • Financial help
    This is called Income Support and it helps people with disabilities who are in financial need pay for living expenses, like food and housing.
  • Help finding a job
    This is called Employment Supports and it helps people with disabilities who can and want to work prepare for and find a job.

http://www.mcss.gov.on.ca/en/mcss/programs/social/odsp/

ODSP and Works Info Sheets

What is Employment Supports

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Employment Supports: A Panel Discussion (Recorded at DSO Info Fair Toronto Oct. 11, 2018)

ODSP is not a measure of last resort

A few weeks ago, I spoke with a frontline ODSP worker who described ODSP as a measure of last resort. In other words, ODSP is only for people facing financially desperate circumstances. Putting it simply, this is entirely false. Even middle-income families need to rely upon ODSP and have every right to do so. Read more

ODSP & Me video

LiveWorkPlay
Understanding the Ontario Disability Support Program

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Disability benefits in Ontario: Who can get them and how to apply

This resource explains who can get income support from the Ontario Disability Support Program and how to apply. It includes information about the forms that have to be filled out and who can fill them out. http://www.cleo.on.ca/en/publications/disabben
Sourced from Community Legal Education Ontario (CLEO) http://www.cleo.on.ca/en

Appeals and internal reviews

This resource outlines the process to follow when a person disagrees with decisions about their right to social assistance from Ontario Works or the Ontario Disability Support Program. It describes how to request an internal review, file an appeal with the Social Benefits Tribunal, and apply for interim assistance.
Link
Sourced from Community Legal Education Ontario (CLEO) http://www.cleo.on.ca/en

Generosity Can Jeopardize Your ODSP

While an aunt, uncle or grandparent are ready to help, giving money to somebody on ODSP without understanding the program’s guidelines can jeopardize the government benefit they are trying to supplement, unless it is done thoughtfully. Read more

Legal information and referral skills for community workers

CLEO (Community Legal Education Ontario)

  1. Detecting legal problems sets out some common things you might hear clients say when they have a legal problem. It also links you to legal information that may be helpful.
  2. Community workers can give legal information to people even if they don’t have legal training. Our tip sheet Giving legal information gives examples of legal information and legal advice to help you understand the difference.
  3. There is a lot of legal information available online – so much that sometimes it can be hard to tell what you can rely on. Our tip sheet Clues to reliable legal information provides a checklist of what to look for when assessing the legal information you find online.
  4. Sources for online legal information lists several websites where you can find reliable online legal information for people in Ontario.
  5. Legal services in Ontario describes and gives contact information for free or low-cost legal services in Ontario.
  6. Hiring and working with a lawyer sets out some examples of when it is important to consult a lawyer. It also contains tips on interviewing a lawyer and discussing fee structures with a lawyer.

ODSP is not a measure of last resort

Ron Malis, M.B.A. – Financial Advisor

This is a case study and extension of Ron’s article that appeared in Community Living Toronto’s Membership Newsletter – Connections – September, 2014 edition.

A few weeks ago, I spoke with a frontline ODSP worker who described ODSP as a measure of last resort. In other words, ODSP is only for people facing financially desperate circumstances. Putting it simply, this is entirely false. Even middle-income families need to rely upon ODSP and have every right to do so.

Kevin and Sophie Brewer (not their real names) have a 22-year-old daughter, Sophie (also not her real name), who has a developmental disability. Sophie lives with her parents and will continue to live with them for at least the next few years. In many ways, Sophie is independent. She is able to use the TTC to get to her part-time job, she knows her way around the stores in her neighbourhood, she can make her own meals when needed, and she can manage her bank account with some help. Sophie hopes to move out at some point and her parents support that idea.

Kevin and Naomi firmly believe Sophie will always need their financial support. Even though their collective annual income is close to $160,000, they have had a difficult time managing expenses over the years. When Sophie was younger, Naomi didn’t work for close to 10 years because Sophie’s needs were much greater at that time. With reduced income over many years and covering significant expenses related to Sophie’s disability, planning for their own long-term future and putting things in place to safeguard Sophie`s financial security has been a real struggle. Like many families, they are concerned they won`t be able to tend to their own financial needs, support Sophie especially when she moves out and leave enough in their estate for Sophie after they have passed away. They simply can`t manage it all on their own.

Turning to government supports, such as the Ontario Disability Support Program (ODSP), may be difficult for some, but it shouldn’t be considered a measure of last resort. ODSP is for people in financial need. That does not mean the individual and their entire family must be destitute before ODSP becomes an option. Families like the Brewers may earn a solid income, but that does not mean Kevin and Naomi have the means to support their daughter entirely on their own and hope to maintain their own financial security. As an adult, Sophie is in financial need.

Even though Sophie still lives at home with her parents, she is still allowed to receive ODSP benefits. The basic ODSP rule is that a single person is not allowed to have more than $5,000 in assets. Her parents’ assets and income are not counted towards this $5,000 limit. She will receive a reduced amount from ODSP since she lives with her parents and does not pay rent, but she still has a legitimate right to ODSP regardless of how much money her parents have or earn.

Once Sophie moves out of her parents’ home, her ODSP benefits will increase if she is paying rent. Many single people without dependents currently receive about $1,075 per month. This amount will help pay many of Sophie’s expenses such as rent, but it is not enough to maintain a reasonable standard of living.

Kevin and Naomi will supplement Sophie’s ODSP on a monthly basis. They will continue to buy her clothes and groceries, take her out for dinner and give her spending money. As long as they are alive and healthy, they feel they can take care of Sophie and pay for any expenses she can’t cover with her ODSP.

But, there are looming questions that keep Kevin and Naomi up at night. How will they make sure they leave enough money to support Sophie after they have passed away? What if they spend more in retirement than they had hoped, because they live longer than expected, or need to pay for supported care due to illness? How will they make sure that any money they leave for Sophie after they have died is managed properly and does not jeopardize her ODSP?

Kevin and Naomi are not alone. Many parents have the same worries. Saving, investing, and estate planning are challenging for any family. Add ODSP into the mix and the complexity increases, significantly. On the one hand, ODSP helps Sophie and the Brewers on a month-to-month basis. On the other hand, ODSP’s rules restrict their long-term planning options. How can they help Sophie save if she is only allowed to have $5,000 in assets? How can they leave her an inheritance?

Many people understand the basics of ODSP. Very few people understand the details. Yes, a single person without dependents is not allowed to have more than $5,000 in assets, but there are exceptions. Those exceptions include:

  • Registered Disability Savings Plan – With the advent of the Registered Disability Savings Plan, some people on ODSP are accumulating significant amounts of money in long-term savings without jeopardizing their ODSP benefits.
  • Personal residence – A person receiving ODSP is allowed to own his or her own residence.
  • Henson Trust: Many parents set up Henson Trusts to hold the assets they leave behind after they pass away. While the assets in the Henson Trust exist to support the beneficiary, they do not affect their ODSP.
  • Up to $100,000 in a combination of cash value life insurance, segregated funds, and discretionary trusts.

There are other exemptions, but the ones mentioned above are very useful for families like the Brewers. They provide options and some flexibility. They will help the Brewers care for their daughter Sophie when they are older and after they pass away.

Determining which solutions to use, how to use them and for what purposes requires an understanding of the pros and cons of each one, but they clearly demonstrates ODSP is not a measure of last resort. Families, their financial advisors and even ODSP frontline workers need to go beyond the basics of ODSP to accomplish key pillars of planning that will safeguard financial security.


Ron Malis is an Insurance Advisor with Independent Financial Concepts Group Ltd. and a Financial Advisor with Worldsource Financial Management Inc. His core focus is working with people with disabilities and their supporting family members. Ron has written many articles on the subject of ODSP, the RDSP and estate planning for families who have children with disabilities. These can be found at www.ronmalis.com

The information contained in this communication is general and is based on the perspectives and opinions of the owners and writers. It is not intended to provide specific personalized advice. Please consult an appropriate professional regarding your particular circumstances. The information provided might be derived from various sources and is believed to be accurate and reliable; however, no warranty can be made as to its accuracy or completeness.

Generosity Can Jeopardize Your ODSP

Maintaining a reasonable standard of living on ODSP is next to impossible. Some ODSP recipients are fortunate to have parents, siblings, or other relatives who are willing to help out, financially.

While an aunt, uncle or grandparent are ready to help, giving money to somebody on ODSP without understanding the program’s guidelines can jeopardize the government benefit they are trying to supplement, unless it is done thoughtfully.

ODSP recipients are allowed to receive up to $6,000 from other sources, including gifts and they are not allowed to have more than $5,000 in non-exempt assets at any one time. Gifts of cash, investments or other assets not managed thoughtfully, have caused people to lose their ODSP coverage, at least temporarily.

As an example, a grandparent has bequeathed $75,000 to their grandson who is 25 years old, lives on his own and is on ODSP. This money far exceeds the asset limits set out by ODSP. The amount is reported to ODSP who halt his monthly payments until he either spends the money or moves it into an exempt asset. Meanwhile, the money may have been put to better use if it were given to the parents to dispense to their son over time in order to maintain and supplement his ODSP. Once the money is given to him, he is not able to simply give it to his parents and expect his ODSP to be reinstated, because ODSP insists assets can’t be given away or sold off at less than fair market value.

Some ODSP recipients facing this type of predicament end up spending all the money they are given until their assets are back in line with ODSP restrictions. In our example, the grandson would spend all or almost all the money given to him by his relative and have to wait until 12 months have passed since he received it, since he is not allowed to receive more than $6,000 in a 12 month period. In the end, the $75,000 was more a curse than a blessing.

If your child is on ODSP, it is a good idea to let people know they should not gift any money or other assets to him or her without discussing it with you first. This preventative measure provides you with an opportunity facilitate the gift so it supplements ODSP income, not end it.

In the event money or assets are gifted, there are strategies to deal with the situation, in most cases. There may be a major expense that ODSP accepts as exempt, such as renovations to a residence to accommodate the person’s disability. It could be used to purchase a primary vehicle. Or it could be used to purchase a different piece of equipment needed as a result of the person’s disability.

The challenge comes if you do not want the money to be spent right away. Rather than spend the money, it can be moved into an “exempt” investment. Exempt investments include the RDSP. All the money could be moved into the person’s RDSP account to safeguard ODSP. However, that may not be the wisest move, especially if you are not prepared to wait years to utilize the money. If the amount of money is less than $100,000, it can be used to purchase a segregated fund – an insurance investment product that acts much like a mutual fund and does not have the same withdrawal restrictions as an RDSP.

One strategy is to put the majority of the money into the segregated fund and then withdraw the requisite amount to fund the RDSP account on an annual basis in order to maximize the government contributions. Then the remaining funds in the segregated fun can be used to supplement ODSP income in a thoughtful and cautious manner.

It is wise to consult a financial professional who understands ODSP rules and regulations before taking action.


Written by Ron Malis, August 2012. Originally posted in Connected Families
Ron Malis is an Insurance Advisor with Independent Financial Concepts Group Ltd. and a Financial Advisor with Worldsource Financial Management Inc. His core focus is working with people with disabilities and their supporting family members. Ron has written many articles on the subject of ODSP, the RDSP and estate planning for families who have children with disabilities. These can be found at www.ronmalis.com

5 Things You Should Do If You are Supporting a Child With a Disability

  1. Secure the Disability Tax Credit Certificate. The Disability Tax Credit Certificate will provide you with tax credits that can save you a significant amount of money in taxes. This is not to be overlooked. If you have a child with a disability that qualifies for the certificate, the tax credit for 2011 is $7,341. If your child is under 18, an additional credit called the Disability Tax Credit Supplement is available as well, equal to $4,282 for 2011. If your child has had a disability for 10 years or more, you may be able to claim these tax credits going back as far as 10 years if you never claimed these credits – many people have received thousands of dollars in doing so.
  2. Open up a Registered Disability Savings Plan (RDSP) account as early as possible and maximize the government contributions every year. The RDSP was created to promote long-term savings to help support individuals with disabilities later in life. The earlier you start the earlier your child will be able to access the funds in the account without the government retracting any contributions they made. The downside of withdrawing money too early is severe. Those who maximize the contributions may realistically accumulate over $300,000. Maximizing government contributions will cost you $1,000 or $1,500 a year, depending on family income.
  3. Protect your income and assets if you and your family rely on it. If losing your income or significant assets (i.e. house, retirement investments, etc.) would create serious hardship, consider insuring your income and your assets. The question you can ask yourself to assess the need is, “what would happen to me and my family if I became disabled due to an accident or illness and my income disappeared or was reduced dramatically?” The other question is, if I were to die, how would my family fair financially?” If your answers describe hardships you would not be willing to endure or your family to endure, speak to an expert you trust.
  4. Prepare your last will and testament. Find a lawyer who has worked with many families who have kids with disabilities because there are some very particular estate planning strategies for parents of children with disabilities, especially if your child is or will be on ODSP. Unless your child will be able to support themselves, financially through their adulthood, the absence of a properly structured estate plan that is well funded can severely affect your child’s quality of life once you pass away.
  5. Get the right advice and support. Either get your current advisor to support you on these particular planning objectives or find one that will. Just bear in mind, as your child grows older, especially if they need to rely on ODSP, you will benefit a great deal more if your advisor understands the disability sector and the related financial planning issues. In addition to helping you determine the appropriate products and solutions, they should also help you implement these solutions in a thoughtful and manageable manner. Your advisor should understand your financial circumstances, including the limits of your resources and the other competing priorities you must manage.

Written by Ron Malis, June 2012. Originally posted in Connected Families
Ron Malis is an Insurance Advisor with Independent Financial Concepts Group Ltd. and a Financial Advisor with Worldsource Financial Management Inc. His core focus is working with people with disabilities and their supporting family members. Ron has written many articles on the subject of ODSP, the RDSP and estate planning for families who have children with disabilities. These can be found at www.ronmalis.com

Newcomers and Disability

Discussions around the experiences of newcomers with disabilities, challenges specific to access to/navigation of services and what service providers in the DS should know about working with diverse newcomer and immigrant communities as well as a 30 minute introduction about the topic and the Bridging Diversity Project.

  • Ilaneet Goren, Diversity Specialist, Community Living Toronto’s Bridging Diversity Project
  • Bob Ferguson, Manager of Service Development, Community Living Toronto
  • Chavon A. Nile, Project Coordinator from OCASI: Ontario Council of Agencies Serving Immigrants

A Shared Learning Forum (Webinar) recorded at Bob Rumball Centre for the Deaf on November 28, 2014.

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Including Children with Special Needs: A Guide for Child and Family Programs

guide

This guide was developed to assist child and family programs to better serve children with special needs and their parents and caregivers. It is intended for any program that serves children from birth to six years of age. Originally published in 2001, it has been updated to reflect current thinking, research and practices within the field of early childhood education and care.
Source: Macaulay Child Development Centre

Including Children with Special Needs: A Guide for Child and Family Programs

Wills and Trusts Information Session

Planning for a secure future

Brendon D. Pooran is the principal lawyer at PooranLaw Professional Corporation.
He regularly provides advice in the area of wills, trusts and estates planning to individuals with disabilities and their families.

Recorded on Monday, October 20, 2014 at the Victoria Village Hub 1527 Victoria Park Ave., 2nd Floor 7:00 – 9:00 pm

Rights!

Kevin

Created his own bill of Rights


Professionals discuss RIGHTs

Brendon Pooran, Pooran Law

Discusses Consent and Capacity law as it relates to people with a developmental disability

James Holzbauer and John Devenish, APSW Assessment coordinators

Present The RIGHTS meme

UN Conventions: Real Promises or Just Words

Presented by Defence for Children International –Canada and Community Living Toronto
Tuesday, May 8, 2018

Host and Panel Moderator: Michael Enright
Lecturer: Anna MacQuarrie
Panelists: Anna MacQuarrie, Brendon Pooran, Jessica Rotolo, Sam Forbes

Part 1: U.N. Conventions: Real Promises or Just Words
Presented by Defence for Children International –Canada and Community Living Toronto
Anna MacQuarrie, is Inclusion International’s Director of Global Advocacy and Human Rights. She has a Masters degree in Human Rights, from the University of Essex. Her focus is supporting the realization of the rights and full inclusion of persons with intellectual disabilities and their families

Part 2: Two Self-Advocates on taking action to make Rights real
Presented by Defence for Children International –Canada and Community Living Toronto
Jessica Rotola and Sam Forbes talk about rights at the “UN Conventions –Real Promises or Just Words?”

Part 3: UN Conventions: Real Promises or Just Words – Panel Discussion
Presented by Defence for Children International –Canada and Community Living Toronto
Host and Panel Moderator: Michael Enright
Panelists: Anna MacQuarrie, Brendon Pooran, Jessica Rotolo, Sam Forbes

Articles

Understanding Capacity, Competency & Consent: Introduction

Audio MP3

Understanding Capacity, Competency & Consent: Personal Care

Audio MP3

Understanding Capacity, Competency & Consent: Property

Audio MP3

Dignity of Risk

Recorded at a Transition Planning training forum put on by The Toronto Networks of Specialized Care in partnership with the Developmental Services Toronto (DSTO) Shared Learning Forum and ConnectABILITY.ca


Advocacy

Tips for successful Advocacy

Working Together: People with Intellectual Disabilities Helping the Toronto Police

A presentation by the Community Living Toronto Self-Advocate council. Recorded at the DS Information fair 2018

A group of Advocates explain what rights mean to them

LGBTQ Group

Discussing the Right to be who you are

Mom’s Group

A group of mom’s talk about the Right to have kids

John

Talks about his Right to live with who he chooses

Jared

Discusses the Right to heard and have an opinion

Alex

Talks about moving out on his own

Shineeca

Discusses the importance of parents showing their love

These videos were shown at our annual conference Connected Families Forum on Saturday October 25th, 2014

Communication and Accessibility in the Community

Including Presenters from the Following Agencies:

  • Bob Rumball Centre for the Deaf
  • Canadian Hearing Society
  • Canadian National Institute for the Blind (Deaf Blind Services)
  • Surrey Place Centre-Augmentative Writing and Communication Writing Aids

A Shared Learning Forum (Webinar) recorded at Bob Rumball Centre for the Deaf on October 31, 2014.

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