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Hi Bruce
I am a parent who has a daughter with down syndrome and have had a keen interest in sustainable housing and creating a home for my daughter for decades now. I was part of the Housing Task Force a few years ago as well. There is a facebook page called Post Ontario Developmental Services Housing Task Force, this is a great resource.
My daughter has lived in her own home for 11 years with the same roommate. We tried for many years to have a 3rd roommate and it never worked, for many reasons. One thing to think about is that the more people involved the increase in having issues to work out. If you are in Toronto, I would suggest you contact the LIGHTS program with Community Living Toronto. The website is LIGHTS.to. They sometimes have opportunities for places with cheaper rent, or can help you find out places that have good landlords. I also run a group called Scarborough Residential Alternatives that is family based network to help families get together and figure out possibilities. it is http://www.scarboroughresidentialalternatives.ca/ , I am in the process of revamping, so if you take a look, let me know what you would like to see on the page.Bonnie
please contact Imagine Respite Services Inc at info@imaginerespiteservices.. WE use this company. There staff are great and reliable.
Have you applied through the DSO for a SIL (supported independent living) worker. There would be no cost to your son. It’s only a few hours per week, but it sounds like that is all you need.
Have you tried contacting Autism Ontario? http://www.autismontario.com/adults
Also Woodgreen Community Services have free walk in counselling clinics. Call 416 645 6000 for more info. Its a start and they might be able to get you hooked up with someone.Hi GT Best
are you by any chance interested in the Bathurst and Lawrence area. I know a woman who is looking to set up a home in that area.Hi Wolfie:
I am assuming you did get ODSP, so you have that income? When you rent, you get a little more money per month. So it gives you $479. per month for rent. Do you object to having roommates? Do you know how to cook? maintain a home – cleaning, grocery shopping, phone the right person for help?
What kind of support do you need? Sorry for so many questions. Where in the city do you want to live?Hi Littlewolf: I am surprised that the OT who prescribed the blanket didn’t give you some places to apply to or apply for you for approval. I would check there first.
Another place to ask is ODSP, A portion of it might be eligible. If you have group benefits at work, it might be covered there.This sounds like a fabulous services. Do you have an area that you work in? East (scarborough)
Hi katb
There are lots of ways to use passport funding other than programs. Have you had a Person Directed plan done to see what your child wants to do during the day. There are all kinds of volunteer opportunities out there, you can use your funding to hire a worker to help support your child to do these activities. Parks and Rec also has lots of various groups and programs where your child can learn new skills and meet new people who are part of their community. Again if he needs extra support you can use your passport funding for a support worker.
Check out opportunities in your neighbourhood you will be surprises at how many opportunities are out there.Hi Sindhu
1. The receipt: you can go to the dollar store and pick up a receipt booklet. They have two copies, so give one to the worker and keep the one that remains in the book. That way you have one compact receipt booklet.
2. Educational Expenditures: can be certain toys that provide an educational component. Books provide reading or learning alphabets.
3. Special learning and development equipment can be blocks, special cutlery so that they can learn how to feed themselves, the clock that gives the visual countdown, I would also check with your regional office and see if certain apps can be purchased, check to see if they will help to cover the cost of an ipad – it can be used as a communication device, learning tool etc.Hi Sindhu. The ACSD funding is for a variety of things. it covers travel to doctors and hospitals
special shoes and clothes
parental relief
wheelchair repairs
assistive devices
hearing aids
hearing aid batteries
prescription drugs
dental care
eyeglasses.
For the Parental Relief, you can use it to pay for someone to watch your child while you take your other children to various appointments, you can use it for various programs at Geneva or other programs. Extra clothing if needed. summer camps.
Keep all your receipts, and put them in a shoe box and sort them once a yard into the various categories.
Also you can apply to the Welcome Policy with Parks and Recreation. This will give each member of the family some funds for various programs. Go to http://www.toronto.ca.
Its a little overwhelming in the beginning, but you’ll get a handle on it.Sorry Jenna, not sure what this is in reference to.
This is normal behaviour of a 27 month old. It has nothing to do with the fact that he has down syndrome. Although the daycare will make a big deal out of it because the child does have down syndrome.
This is an excellent opportunity for the daycare to teach all the children that biting and pulling hair hurts and is not a nice way to treat each other. For children of this age, a lot of pictures can be used to talk about how to treat people. When it happens with any of the children, not just the individual with ds, give both children time to calm down, talk to the children who did the offense about how they hurt the other child and have them hug and say, sign, or use a picture symbol to say sorry.
This is not for the mother to fix at daycare, it is for the daycare to fix. The mother can only work on it when it happens at home.