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Hi Afreen
Another place to check out is on the web at http://www.communitylivingontario.ca. click on the right hand side where it says Administrative Justice Support Network. there is a contact section. they will help you as well.
Sorry Eric, but in answer to you question about your MPP. The individual is voted in by the public to represent you at the legislative. Every question and concern is important and they should be able to give you some suggestions and help. Best to make an appointment.
no sure where in the city you are, but you can try http://www.imaginerespiteservices.com/
Thanks Madeleine.
this is good to know.Lots of ways this can be done. there are covers for the seat beat so that he can’t open it.
If you know you are going a different way, then you can do a picture book of the route you are going to take and talk to him about it before you go.
Also you can do a social story about how we have to keep our seat belt on in the car. Everyone has to wear a seat belt. Also you can play a game of going to where ever you are going and use chairs to use as the car seats. Make sure that you use something for the seat belt – a belt or tie can work.Hi
Let me know if you are going to do this on a regular basis and I will add you to our parent group list that we send out to families. A flyer would be great. BonnieHi Jenna
Unfortunately support workers will come and go as their live goes in a different direction. A support worker is not your friend, but some one who is paid to help support you in your journey. This journey includes building real relationships with people who are not paid to be with you. and sometimes friends come and go, change and sometime come back when their life is less hectic.
A worker should not call themselves your friend, but your support worker. They are there for a specific reason. This doesn’t mean they are bad people or don’t like you, it just means they were hired for a job and either the job is completed or an opportunity has come up in their life that is helping them toward their goal.Wow. This was very inspiring. Every parent should hear this and have HOPE>
Too bad, but not all programs are for all people. I would still reconnect with them and see if they know of someone who is looking in Newmarket.
Also I am going to send it to a Family Alliance Network in Newmarket and they can send it out to their families.Hi MAF
you said your son was looking for a place around Yonge st. I know you said he lives in Newmarket, but there is a post under steps to independence about a condo a Yonge and Steele. Might be something he’d be interested in.
Were you by any chance part of the Try Another Way with Community Living? They might be able to help find a roommate. I can send you a contact if you weren’t.
Another idea, if you are near a college or university is a student to rent the other bedroom. It wouldn’t be for support, just to help share costs.Did anyone sign up for the pilot project? How is/did it go?
Sounds like a great idea. Many people have ipads and iphones. Maybe even an app for a laptop?
Hi Pippa;
We, the parents, don’t organize so much these days. Jenny lives in her own home with 2 roommates and support. Quite a few of her friends also live on their own. They actually get together more these days at one or anothers homes or go out for various activities.
Not sure where you are in the city, we are in the east end of Scarborough. The support is through imaginerespiteservices.com. Julie, the woman who runs the service, has great staff, keeps the groups small and engages in the community. Check out her website, if your interested you can contact her through the web site.
Sounds like Emmanuel is very capable. Have you thought of independent living for him. You can check out the group that I run – sralternatives.weebly.com. We are parents that meet once a month and brainstorm to figure out how to make independent living happen.For places to meet, try the self advocate council with Community Living. They get together on a regular basis, have social nights as well. There are many dances that go on every month – check with the Down syndrome association or with Community Living in your area. Parks and rec also have some hang out place across the city, again phone your area Parks and rec and tell them what you are looking for. Respiteservices.com also has lots of information on all kinds of things that are going on. You can register on their site or give one of the facilitators a call.
What does your son do during the day – does he have anyone that he seems to have a connection with? We used to have a regular monthly get to gether with several individuals that my daughter knew. We would set up a schedule and each month someone would host a pizza and movie, games, kareote night.
Hope this gives some ideas.It was quite an eye opener. Somethings I would never have thought about, getting ideas from other members of her network was sometimes surprising. Setting up realistic goals and out comes is extremely important. Also getting people to sign up for various goals at the meeting is important so that they become responsible for helping the individual acheive their goals.
It’s a fairly lengthy process, usually takes 2 to 3 hours, so make the experience a welcoming comfortable one. Food and coffee is always good to help encourage the hospitality of the event.
Facilitation after the plan is made, helps the family move the plan forward. Some families are not comfortable with parts of the plan and are not good connectors with the community. I would say that this is the biggest step that is missing in the process. Many great plans are sitting in drawers, because families don’t know where to begin.A couple of questions. Does the hand flapping interfere with his activities? Is it done a times of anxiety?
Often a more socially acceptable anxiety reducing activty is taught to replace the hand flapping. Your sons hand flapping is satisfying a need, so you can’t stop it, again teaching an alternative is best. In the home the best is to carry on the activity you wish to teach and ignore the hand flapping, otherwise you are spending you whole time trying to get him to stop the hand flapping.